Topic

does anyone else here live with epilepsy?How does it affect your everyday living? Is it something your embarrassed of and is it under control with medication; if it is, what do you take?
I've been living with epilepsy since l was 5 years old...i did not start having them regularly until a bad car accident last january.l lost my license for half a year and also deal with the embarrassment of friends seeing me tweak out...anyone else deal with things like this?Oh, l take keppra, and l like it...but its freakin expensive!!!
wow raven...very informative...thanks a lot
zellparis, its nice to actually see a different side of you...lol l did not know you had it in you...

 

Epilepsy?!?!?

Hi, yes I have epilepsy. I thought I was going crazy coz I would be walking to work & hear conversations going on in my head. It was so intense that I could not talk or think properly. It happened at work one day & it was really embarassing. I was seeing like my 5th doctor one day & he finally diagnosed me correctly. When I walked out of his office I had a grand mal seizure & dropped on to the ground. It was so scary that I thought I was dying because it feels like ur bodily functions r shutting down. I am on Tegretol & it seems to be working but yes it is expensive.

 

Epilepsy?!?!?

I lived with it from the age of 22 until the age of 31 when I had my operation. It did affect my living some, but did not embaress me.
I lost freinds who did'nt want to be seen with me ,but I thought to myself .if they were freinds they would stick by me.
The best thing to do is not be ashamed of yourself, go out in public like I did. If u would take a seizure someone would know what is going on & help u if needed.
People I worked with could'nt beleive how open I was on the subject of my disability after it hit. I told them the best way to get thru it is to laugh & have fun rather than be quiet & hide.
I took all kinds of meds, & since my operation I had to remain on meds & they r keppra & topamax.

 

Epilepsy?!?!?

i do not know much about it but i have seen people have episodes with it and rest assure that it is nothing to be embarrassed about because seizures are a part of the affliction and my only concern is that when and if that ever happens to you that you are some place safe with people who would help and not around people who would try to take advantage of my goddess, i do not know how women feel but to men this is a none issue in choosing a mate

 

Epilepsy?!?!?

yes i do, i have epilepsy. I had mine when i was a little girl back in England. Which i was born in England UK. And i am on epilim EC500g 4 times a day. And i am on epilim EC200g twice a day. As well as i am on tegretol CR400g twice a day. All in total 8 tablets in one day everyday, if u add all of these medications up correctly, which they r correct. My epilepsy is embarrassment to me & my epilepsy depresses me. i also despise my epilepsy by hating it to death. Because i hate limitations in my life & that is what my epilepsy is to me.

Plus i had to decide to give up any chance of having any kids because of my epilepsy & my epileptic medication. So i ended up with a tubaligation for life. Which it was a teary emotional thing for me to go through at the time. But I can handle the fact that i will never be a mother ever. And that is ok with me health wise.

I am very emotional & protective person within life.
Sorry to hear that u have got it. If ur friends love u that would accept u who u are, even with a medical condition. I will always have my epilepsy for life. I have lost friends from my teen years & right up to now i still have no friends. And there r tons & tons of pages of information about epilepsy upon the internet. Within all the internet search engines.

Also there r tons & tons of information about epilepsy within the books & from the doctors as well as from within the hospitals & clinics. The information about epilepsy is unlimited. And u r quite welcome for the infomation, bre.